STEWARTVILLE, Minn. - Barbara Hatcher sat in her favorite rocking chair, head bowed and tears pouring from her eyes, as she recalled a recent trip to the hospital emergency room.
"It was terrible, just terrible," said Hatcher, 79, who a year ago was diagnosed with a rare form of blood cancer. "My fear is they will take me away and I'll die there, alone."
Like untold numbers of frail and elderly Americans, Hatcher wants to live out her final years in the place she feels most at peace: her own home. It is here, in a living room crammed with memories, that Hatcher rocked each of her seven children to sleep. Family photographs and teddy bears bearing the logo of her beloved Nebraska Cornhuskers crowd the room.
Yet when she tried to find home caregivers to make that possible, Hatcher and her family found themselves thrust into an ordeal they never expected — a world of erratic care, dubious sales tactics and bewildering marketing claims. Overwhelmed, they are now shouldering the burden of home care on their own.
Explosive growth in the number of frail and elderly Americans who need care at home is producing wrenching changes in the industry they rely on. The once-amicable and highly local business of home caregiving has become a multibillion-dollar industry marked by for-profit franchising and cutthroat competition.
At the center of this transformation is a new category of caregiver: the national home care chain. Like the fast-food franchises they emulate, many of these chains rely on a low-wage army of caregivers who often feel little loyalty to their clients or to the corporations that employ them. The chains, with names like Comfort Keepers and Home Instead, now operate more than 5,600 outlets — filling a vast need for help but leaving many frail adults with substandard or inconsistent care, say elder care advocates.
Thanks to light regulation and low barriers to entry — almost anyone with $40,000 and a bank credit line can start a home care franchise — thousands of people with no medical experience are getting into the caregiving business. They buy artificial "territories" from the franchise companies, and then sell or shut them down if the concept fails.
"It's the 'McDonaldization' of home care," said Dr. Robert Kane, chairman of long-term care and aging at the University of Minnesota's School of Public Health. "What you have here … is the flavor of the month, and everyone is rushing into it."